When my son, Tristan’s, eczema peaked at 3 years old, he was head to toe covered in red, itchy, dry skin that was inflamed and painful looking. I cried on and off throughout each and every day back then out of sheer frustration over not knowing how to help him and with worry about how this may affect his quality of life, both at the time and in the long-term. Sleep was rare because my husband and I had to take turns laying in bed with Tristan to prevent him from scratching himself until he drew blood. And we had a newborn child that needed us the other half of the night. To make matters worse, my husband and I disagreed, rather intensely at times, about how to best treat Tristan’s skin. My husband wanted to jump back to the topical steroids that were being prescribed at ever-increasing strengths by his pediatric dermatologist and I felt in my heart that it wasn’t the answer for Tristan. You can read more about our journey with topical steroids here.
They were dark times for my family and I can honestly say I hit rock bottom. I remember calling a nurse at National Jewish Hospital and just sobbing over the phone. I had dreamed about taking Tristan there, but since we lived in Canada, it was just too difficult. I think I just wanted a connection with their Atopic Clinic. Of course they couldn’t provide me any real advice over the phone, but it was nice to speak with a nurse that understood what I was going through.
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